When people lose their sense of smell – through injury, illness or because of the medication they’re taking – it can be a life-changing and deeply disorientating time, and we refer to this as experiencing ‘anosmia’. Fifth Sense is a UK charity specifically for people affected by smell and taste disorders, and they’ve launched a nationwide survey collecting tips and experiences to develop what will be (remarkably) the first-ever exchange of coping strategies and ideas for better living.
The ‘Top Tips’ survey will be circulated amongst Fifth Sense’s 2000+ members, but they’re reaching out to the wider smell and taste disorder community, and the tips they’re putting together will cover medical, psychological and lifestyle categories, such as:
- Getting advice from the medical profession
- Coping with the emotional impact of smell and taste impairments
- Eating, drinking and cooking
- Smell training
- Top rants – what frustrates you the most about having a smell or taste disorder?
Fifth Sense founder and Chair, Duncan Boak, who lost his sense of smell and taste following a head injury in 2005, explained why he thought this was so important, saying ‘This is a great opportunity for the smell and taste disorder community to share ways they have found of coping with specific aspects of their condition. A key part of Fifth Sense’s work is creating opportunities for people to share their experiences and support each other, and our Top Tips survey is an important next step in this.’
The results of the survey will be shared via social media and published on the charity’s website as a series of downloadable information sheets, and will continue to serve as an ever-evolving resource for those seeking advice and tactics for living well, and – equally important, as Boak points out – a place where the smell and taste disorder community can share experiences of what it’s really like to live with an impaired sense of smell or taste.
Have you had a smell disorder, live with someone who does or simply want to find out more? Get in touch with Fifth Sense and join in the discussion!
Written by Suzy Nightingale